Wednesday, January 13, 2010

The Good and the Bad

We are home from the hospital and Ker is doing very well. He is not his normal self but overall is doing GREAT! There were three reasons that we took Isaac in today so I will go over each of them in their own paragraph then summarize at the end.

Because Isaac has been struggling so hard to breath at night his Dr.'s were concerned that his airway was damaged when he had been intubated previously. This damage can cause the airway to become too small and create difficulty breathing. We had his airway sized today and it was slightly smaller then we would expect for his size but shouldn't be causing his breathing problems. So that is good news. It also leads to more questions. Not sure where to go with this from here.

Isaac's brain is not perfectly normal. We know this. There is a change in the structure of his brain a little bit of damage that they didn't see before. This is just a structural thing and we don't know what that means functionally now or in the future. We are going to see the neurologist again in February and will ask LOTS of questions.

Isaac's heart looks about like we expected. There was a little bit of injury to the vessel that we had been unable to see before because of the way we were imaging his heart. We were able to see it today and that tells us that he defiantly did have a heart-attack back at 4 1/2 months. There is nothing in his heart imaging that would explain his pale coloring and cold extremities. We are going to go in and see his cardiologist so she can evaluate him in her office when he is not sedated.

Nothing shocking was seen in any of these tests. It doesn't appear that his airway is the cause of his problems. It doesn't appear that his brain is the cause of his problems. It doesn't appear that his heart is the cause of his problems. SOOOOO Why is he so cold and pale? I will be following up with all of the specialists involved in his care and taking him to his general pediatrician and try to find some answers. Anyone have any ideas?

Thanks to everyone for their prayers and well wishes. We are so blessed to be surrounded by loving family and friends.
On another note we are still having our Wii giveaway and fundraising event. Feel free to pass the info along to your friends.


Jayme said...

I will be praying for your little guy. What a hard place to be as a Mom, not knowing how to make things easier for your little one. I will also keep you in my prayers. Hoping the Doctors can find an answer.

Tracie said...

I can only imagine how frustrating this must be. God bless that little man and know that I continue to pray for answers and solutions.

Steve and Karen said...

I hope there is a simple reason and simple solution to all your questions. It's hard when our babies are sick.

Krista said...

Oh wow - I haven't been reading since the beginning so I didnt' realize your son's health issues. Praying you get some real answers soon!

littlefox said...

So glad there were no jaw droppers, but I hope you get the answers you want! It sounds like you might be seeing Dr. Judd. I hope that she tells you the same thing she recently told us about very similar symptoms with Brandon - don't worry there's nothing wrong! I miss getting to see you guys, but always keep up with your blog. Best Wishes!