Tuesday, August 30, 2011
So Abeni is home with us now and has been for 10 months. Where does the time go? She is such an incredible little girl. She is everything good about a baby. She sleeps well, she is cuddly, and she is funny. She fits into our family perfectly.
This brings me to the rest of the story. During a meeting with our social worker in Korea just before we met Abeni we were told that she had low muscle tone in her legs and wasn't yet pulling to stand. That was concerning information but I figured that it was no big deal. She probably just needed a little extra excercise. When I met my sweet baby girl I was a little taken aback. She was still a baby in so many ways, despite this she was perfect and ours in every way. Abeni was very delayed when we got her home. At 12 months I assesed her develpment to be about in the 4-5 month range. She was able to roll over and babble but she was not sitting on her own or pushing up onto all fours. She did not bear any weight on her legs. She didn't know how to eat solid food and would not feed herself. Friends and family were thrilled that our daughter was home but you could feel the concern for us and for her. I only knew what I felt in my heart. This was my baby and she and we would figure out the rest. It was not easy.
I already had a son at home who has special needs. I was worried about how extensive what I was seeing would be. I can tell you that I was often praying and trying my hardest to trust. We also heard a funny sound when our angel girl breathed. In December she got sick, very very sick. I noticed her retracting when she breathed I called the pediatrician and she said to bring her to their office if she couldn't get the breathing under control we would admit her to the hospital. That is when our pediatrician first heard the sound. There was something not quite right with Little Miss's right lung. We were able do get her breathing under control and we were referred to a pulmonologist. We did a flexible bronchoscopy. We found out that little miss had a very constricted right broncus. We were referred to the best pediatric ENT in the state. He found out that Abeni's pulmonary artery and esophagus are basically sandwiching her right broncus. He did two surgery's to try and dialate the opening. On the second attemt he was more successful and was able to open the area 1mm. We are now just waiting to see what happens as our little girl grows.
In the end it has been a wild and crazy 10 months. Abeni is doing really well now she is growing and developing very nicely. She has been diagnosed with occult spina bifida and we have seen a little bit of scaring on her brain from her early birth but overall our angel has become just another healty, wild little, almost two year old. We are the lucky ones.